Berman Institute Monthly Newsletter – April 2022

April 2022

Announcements

Cynda Rushton is a recipient for the Marguerite Rodgers Kinney Award for a Distinguished Career from the American Association of Critical-Care Nurses.

Daniel Finkelstein, an ophthalmologist and medical ethics specialist, dies
The Baltimore Sun | March 6, 2022
Dr. Daniel Finkelstein, an ophthalmologist, medical ethics specialist, and member of the Berman Institute faculty, died Feb. 25 at the Blakehurst Retirement Community.

Theo Schall won the Marilyn Bergner Award for Health Services Research for his dissertation.

The National Academies released Realizing the Promise of Equity in the Organ Transplantation System. Mario Macisserved on the committee.

Our Debra Matthews is serving on a new consensus study at the National Academies: Creating a Framework for Emerging Science, Technology, and Innovation in Health and Medicine.

Events

Navigating the Ethical Dimension of Vaccine Hesitancy Research by Rachel Gur-Arie, PhD
Hot Topics in Research Ethics
Monday, April 11, 2022, 9 – 10 am EDT
In this talk, Dr. Rachel Gur-Arie will share her experience working on empirical, qualitative studies investigating the ethics of vaccine hesitancy among healthcare workers.. Advanced registration is required.

Prognosis in Serious Neurological Disease: Opportunities and Challenges
Bioethics Seminar Series
Monday, April 11, 2022, 12 – 1 pm  EDT
The Sheila Hutzler-Rives Memorial Lecture, presented by Robert G. Holloway, M.D., M.P.H.

Caring for Our Patients, Our Students, Our Colleagues, Ourselves: The Power of Narrative
Johns Hopkins Hospital Ethics Committee and the Johns Hopkins Berman Institute of Bioethics
Tuesday, April 19, 2022, 12 – 1:15 pm EDT
Join us online for the 28th Annual Shallenberger Lecture, with speaker, Hedy S. Wald, PhD.

Seminar Series: Prognosis in Serious Neurological Disease: Opportunities and Challenges by Robert G. Holloway, M.D., M.P.H
The Sheila Hutzler-Rives Memorial Lecture
April 13, 11 a.m. – noon

Unproven Stem Cell Therapies: A Growing Global Health Issue
Join Berman Institute Director Jeffrey Kahn and other global experts for this presentation in collaboration with the New York Stem Cell Foundation
April 19, Noon-1:15 p.m.

Caring for Our Patients, Our Students, Our Colleagues, Ourselves: The Power of Narrative by Hedy S. Wald, PhD
28th Annual Shallenberger Lecture
April 25, Noon-1 p.m.

Seminar Series: The Ethics of Surrogate Decision-Making by David Wendler, PhD, MA
Dr. Wendler has written widely on such topics as assent in pediatric research, assessing research risks systematically, research with stored biological samples, and protecting communities in biomedical research from exploitation.
April 27, 5-6 p.m.

Holocaust Remembrance Day Lecture
Holocaust and Medicine Education for Resilient Professional Identity Formation: A Survivor’s Daughter Teaches German Medical Students at Auschwitz

Publications

Click to view

‘We will never give up’: a qualitative study of ethical challenges Syrian health workers face in situations of extreme violence
Disasters
Authors:  Namrita Singh, Brittany Redman, Grant Broussard, et al., including Leonard Rubenstein

Attacks on Health Care in the War in Ukraine International Law and the Need for Accountability
The Journal of the American Medical Association
Authors: Lawrence Gostin and Leonard Rubenstein

Food, Gentrification and Located Life Plans
Food Ethics
Authors: Matteo Bonotti and Anne Barnhill

Investigating the impact of the COVID-19 pandemic on breast cancer clinicians’ communication about sexual health
Supportive Care in Cancer
Authors: Jennifer Barsky Reese, Areej El-Jawahri, Kristen Sorice, Christina Cruz, et al including Mary Catherine Beach

“It All Depends”: Patient and Decision Partner Experiences in Cancer Clinical Trial Decision-Making
Qualitative Health Research
Authors: Tamryn Gray, Sarah Allgood, Marie T. Nolan, et al.

Language and Health (In)Equity in US Latinx Communities
AMA Journal of Ethics
Authors: Zackary Berger and Yael Peled

Toward Responsible Public Engagement in Neuroethics
AJOB Neuroscience
Authors: J. Lomax Boyd, Jeremy Sugarman

Subsequent Buprenorphine Treatment Following Emergency Physician Buprenorphine Prescription Fills: A National Assessment 2019 to 2020
Annals of Emergency Medicine
Authors: Bradley D. Stein, Brendan Saloner, Rose Kerber, et al

Identifying effective interventions to promote consumption of protein-rich foods from lower ecological footprint sources: A systematic literature review
PLOS Global Public Health
Authors: Rimante Ronto, Golsa Saberi, Gianna Maxi Leila Robbers, et al including Jessica Fanzo

Against COVID-19 vaccination of healthy children
Bioethics
Authors: Steven R. Kraaijeveld, Rachel Gur-Arie, Euziebiusz Jamrozik

Participant Perspectives and Experiences Following an Intensively Monitored Antiretroviral Pause (IMAP) in the United States: Results from the AIDS Clinical Trials Group (ACTG) A5345 Biomarker Study
AIDS Research and Human Retroviruses
Authors: Karine Dube, Shadi Eskaf, Liz Barr, et al, including Jeremy Sugarman

Chapter 27 – Ethics In and For the Organization, in Guidance for Healthcare Ethics Committees
Cambridge University Press
Author: Margaret Moon

Exploring the Experiences of Co-morbid Pain and Depression in Older African American Women and Their Preferred Management Strategies
Frontiers in Pain Research
Authors: Brittany F. Drazich, Emerald Jenkins, Manka Nkimbeng, et al, including Mary Catherine Beach

Use of Buprenorphine for Opioid Use Disorder among US Adolescents and Young Adults During the COVID-19 Pandemic
Journal of Adolescent Health
Authors: Rachel Alinsky, Laura Pritchett, Hsien-Yen Chang, et al, including Brendan Saloner

Trends in Engagement With Opioid Use Disorder Treatment Among Medicaid Beneficiaries During the COVID-19 Pandemic
JAMA Health Forum
Authors: Alyssa Shell Tilhou, Laura Dague, Brendan Saloner, et al

Public opinion regarding U.S. Food and Drug Administration approval of aducanumab and potential policy responses: A nationally representative survey
Journal of the American Geriatrics Society
Authors: Michael J. DiStefano, G. Caleb Alexander, Daniel Polsky, Gerard F. Anderson

Introducing an Ethics Framework for health priority-setting in South Africa on the path to universal health coverage
The South African Medical Journal
Authors: SAVE-UHC (South African Values and Ethics for Universal Health Coverage) Working Group and Research Team. Working Group, includes Michael J. DiStefano, Carleigh Krubiner, Maria Merritt, Ruth Faden

Developing and Piloting a Context-Specified Ethics Framework for Health Technology Assessment: The South African Values and Ethics for Universal Health Coverage (SAVE-UHC) Approach
Technology Assessment in Health Care
Authors: Carleigh Krubiner, Nicola Barsdorf, Susan Goldstein, et al. including Michael J. DiStefano, Maria Merritt, Ruth Faden

Streamlined versus traditional consent for low-risk comparative effectiveness trials: a randomized experimental study to measure patients’ and public attitudes
Journal of Comparative Effectiveness Research
Authors: Nancy Kass, Ruth Faden, Stephanie Morain, Kristina Hallez, Rebecca A. Stametz, et al

Respect, justice and learning are limited when patients are deidentified data subjects
Learning health Systems
Authors: Marielle Gross, Amelia J. Hood, Joshua C. Rubin, Robert C. Miller Jr.

The Racialized Marketing of Unhealthy Foods and Beverages: Perspectives and Potential Remedies
Journal of Law, Medicine, and Ethics
Authors: Anne Barnhill, A. Susana Ramirez, Marice Ashe, Amanda Berhaupt-Glickerstein, et al

WHO guidance on COVID-19 vaccine trial designs in the context of authorized COVID-19 vaccines and expanding global access: Ethical considerations
Vaccine
Authors: Jerome Amir Singh, Sonali Kochhar, Jonathan Wolff, et al, including Ruth Faden

Rule by Automation: How Automated Decision Systems Promote Freedom and Equality,
Moral Philosophy and Politics
Authors: Jacob Sparks, Athmeya Jayaram

Global disparities in public health guidance for the use of COVID-19 vaccines in pregnancy
BMJ Global Health
Authors: Eleonor Zavala, Elana F. Jaffe, et al, including Carleigh B. Krubiner, Rachel Gur Arie, and Ruth Faden

Ethics and Well-Being: The Health Professions and the COVID-19 Pandemic
Journal of Academic Medicine
Authors: Cynda H. Rushton and Mark T. Hughes

Governance of Emerging Technologies in Health and Medicine — Creating a New Framework
NEJM
Authors: Debra Matthews, et al.

Click to see full list

March 31, 2022
War in Ukraine: Perspectives on the Ongoing Crisis in Ukraine
Johns Hopkins University HUB
Five Johns Hopkins experts, including Leonard Rubenstein, discuss the near- and long-term global consequences of the conflict.

March 28, 2022
Why hospital bombings remain difficult to prosecute as war crimes
BMJ
Featuring our Leonard Rubenstein.

March 23, 2022
The Play’s the Thing for Nurses Coping With Pandemic’s Sting
MedPage Today
How the age-old themes of a Greek tragedy can spark new conversations. With comments from Cynda Rushton.

March 22, 2022
Attacks on Ukraine’s Hospitals Will Cause Long-Term Harm to Health
Direct Relief
With Leonard Rubenstein.

March 21, 2022
How Technology Might Bring War Criminals To Justice In Ukraine
Forbes
With quotes from Leonard Rubenstein.

March 17, 2022
Health care is becoming a target in Ukraine
Washington Post
With our Leonard Rubenstein.

March 16, 2022
Russia’s strike on Ukraine maternity hospital is part of a terrible wartime tradition
NPR
With our Leonard Rubenstein.

Work Begins on Project to Incorporate Human Rights-Based Frameworks into Food Systems Policy and Planning
Johns Hopkins Berman Institute of Bioethics
The Consortium for People-Centered Food Systems, led by Bloomberg Distinguished Professor Jessica Fanzo at Johns Hopkins University, has initiated the first phase of its ten-year effort to foster human rights-based approaches to food systems policy and planning.

Confronting Grief, With Margaret Atwood, in ‘The Nurse Antigone
The New York Times
With Cynda Rushton.

Humanity Under Fire As Russia Bombards Ukraine
JHU HUB
With Leonard Rubenstein.

March 11, 2022
Can a Greek Tragedy Help Nurses Heal From the Stress of the Pandemic?
Mindful
Featuring our Cynda Rushton.

March 10, 2022
Russia Has a Long, Cruel History of Attacking Hospitals. Maybe This Time Its Leaders Will Be Prosecuted.
Mother Jones
Our Leonard Rubenstein writes

March 6, 2022
VIDEO – Ukraine: The Human Price of War
Center for Strategic & International Studies (YouTube)
Leonard Rubenstein is interviewed.

March 2022
‘How Can Acute Care Recover from the Pandemic?’
American Journal of Nursing
A timely conversation with four nurse leaders, including Cynda Rushton.

Outreach

“What’s Ethical About Infertility: Protecting a Child’s Right to an Open Future”
Sinai
April 19, 2022
Pediatric grand Rounds at Sinai by our Yoram Unguru.

Unproven Stem Cell Therapies: A Growing Global Health Issue
The New York Stem Cell Foundation
Wednesday, April 13, 2022, 11 am – 12 pm EDT
Experts Peter Marks, MD, PhD, Timothy Caulfield, LLM, FRSC, FCAHS, Valentina Fossati, PhD, and Jeffrey Kahn, PhD, MPH explore the science behind legitimate stem cell therapies and what these unproven stem cell clinics are offering patients. This discussion was moderated by NYSCF CEO & Founder Susan L. Solomon, JD.

“Ethical Considerations for Cis Providers of Trans Care”
JH Center for Medical Humanities and Social Medicine Graduate Fellows Workshop
April 1, 2022
Talk by our Theo Schall.

Big Data, Precision Medicine, Research & Resilience in Southeast Indian Country
SENAHD
Thursday, March 24, 2022
With our Debra Matthews. Link to watch talk.

“Eduardo Kac: Telepresence: Bio Art and Space Poetry”
Sawyer Seminar on Precision and Uncertainty in a World of Data in collaboration with Johns Hopkins University Center for Advanced Media Studies and the SFN Parkway Theater,
March 16, 2022
With our Jeff Kahn.