Patients’ Views on Consent and Respect

Demonstrating Respect and Acceptable Consent Strategies: What Matters to Patients in PCOR?

About the Project

Building on lessons learned from our PCORI-funded pilot study (Stakeholder Views of Streamlined Informed Consent Options for CER), this study measured patients’ views of the acceptability of streamlined disclosure/consent procedures for a low risk randomized CER study under different conditions relating to patient respect, information about the need for more evidence about medical treatments, and the explicit use of the word “choice” when discussing disclosure/consent with patients.

This project used “white board” animated short videos, developed in collaboration with Booster Shot Media, to portray streamlined and traditional consent approaches.

Arm 1
Welcome Video
MD simulation

Arm 2
Welcome Video
MD simulation

Arm 3
Welcome Video
MD simulation

Arm 4
Welcome Video
MD simulation

Arm 5
Welcome Video
Waiting Room part 1
Waiting Room part 2
Waiting Room part 3
MD Simulation

Arm 6
Welcome Video
MD Simulation

Arm 7
Welcome Video
MD Simulation

Principal Investigators

Ruth R. Faden, PhD, MPH
Berman Institute Founder; Core Faculty; Philip Franklin Wagley Professor of Biomedical Ethics
Nancy E. Kass, ScD
Deputy Director for Public Health; Core Faculty; Phoebe R. Berman Professor of Bioethics and Public Health