Supporting parents and clinicians as they care for children with multi-system disease, dependence on medical technology and frequent/prolonged hospitalizations
The Pediatric Chronic Critical Illness Research & Ethics Program addresses issues related to medical decision-making, family experiences, long-term placement options, palliative care, and end-of-life care for children with chronic critical illness (CCI). This work arises from the increased number of children with CCI and their unique care needs. In the context of limited resources, there are major ethical dilemmas surrounding care; currently, children with CCI, their families, and their providers do not receive all of the supports that they need to thrive, both inside and outside of the hospital.
This research program engages with leaders in medicine, bioethics, and public health to expand the evidence-base for novel approaches to care for children with CCI and their loved ones.