Building Clinician-Parent Partnerships to Improve Care for Chronically Critically Ill Children

Families and clinicians report feeling unprepared to care for children with CCI.

Children with chronic critical illness often have repeated hospitalizations, dependence on chronic medical technologies, and very complex home care needs. Clinicians and families are often unprepared for their unique care needs. The current project designs targeted, innovative educational interventions to optimize patient well-being, empower family partners, and harness hospital resources.


Develop paired family and clinician CCI education interventions in the form of short videos delivered at three key clinical timepoints (Time of CCI diagnosis; Intrahospital transfer; Hospital discharge).

Methodology & Progress

We will create illustrated 5-minute videos for families and clinicians and distribute at the 3 clinical timepoints for eligible patients with CCI.


Coming soon!


Coming soon!