Pediatric Chronic Critical Illness Collaborative

Connecting researchers and trainees to increase quantity, quality, and impact of research about care for children with chronic critical illness

Johns Hopkins is home to the Pediatric Chronic Critical Illness (PCCI) Collaborative, a group of individuals who are dedicated to research and practice that supports children with PCCI and their families. Researchers and clinicians from around the United States are invited to meet regularly and discuss their future and ongoing research projects related to PCCI.

In addition, the PCCI Collaborative works together on larger group projects; any interested PCCI Collaborative members are invited to participate. We aim to have at least one active PCCI Collaborative project at all times.

Represented Institutions

  • Children’s National Medical Center
  • Columbia University Vagelos College of Physicians and Surgeons
  • Johns Hopkins Berman Institute of Bioethics
  • Johns Hopkins School of Medicine
  • Johns Hopkins Bloomberg School of Public Health
  • Seattle Children’s Hospital and Research Institute
  • University of Maryland Medical Center
  • University of Minnesota Department of Pediatrics
  • University of Mississippi Medical Center

Current PCCI Collaborative Project

Raising Children with Medical Complexity: Issues in Housing and Household Expenses
Assessing the housing challenges for children with special health care needs in the State of Maryland

Past PCCI Collaborative Projects

A Qualitative Look Into Pediatric Home Health Care

Documenting pediatric home health care barriers and facilitators to help children live at home with their families.

Click here to learn more about this project.

A Snapshot of Pediatric Chronic Critical Illness in the United States

Assessing the point prevalence of pediatric chronic critical illness at six academic pediatric referral centers in the United States.

Stakeholder Perspectives of Pediatric Chronic Critical Illness

Highlighting concerns of experts in pediatric chronic critical illness (e.g. providers and parents).

Project Lead

Renee Boss, MD, MHS
Core Faculty; Associate Professor

Project Contact

For researchers, students, or fellows interested in joining the PCCI Collaborative listserv, please email Jess Raisanen at