Targeting care for children with pediatric chronic critical illness can only happen when we understand the unique needs that they and their families have both as inpatients and outpatients.
To describe the experiences of families of children with chronic critical illness and of clinicians who regularly care for these patients.
Methodology & Progress
Semistructured interviews were conducted with 51 stakeholders known for their CCI expertise. Stakeholders were from 5 metropolitan areas and were either (1) interdisciplinary providers (inpatient and/or outpatient clinicians, home health providers, foster care affiliates, or policy professionals) or (2) parents of children with CCI. Interview transcripts were qualitatively analyzed for themes.