Berman Institute Monthly Newsletter – December 2019

Announcements

Former Hecht-Levi Fellow Stephanie Morain, PhD, co-authored a paper titled “How Can Mobile Apps Improve Clinical Trials and Safeguard Participants?” for the Journal of the National Cancer Institute. The Hastings Center awarded the paper the winner of the inaugural David Roscoe Award for an Early-Career Essay on Science, Ethics, and Society.

Debra Mathews, PhD, MA, joined the International Neuroethics Society Executive Committee.

Upcoming Events

December 9, 12:00 – 1:15 pm
Seminar: Face On or Face Off: Facial Transplantation and Resistance to Categorization
Sherrona Pearl, PhD
Location: Feinstone Hall, Bloomberg School of Public Health. Lunch will be provided.

December 14, 8:00 am – 3:00 pm
Symposium on Humanism and Medicine: As if the Patient Mattered
Cynda Rushton, PhD, RN, FAAN, and Jeremy Greene, MD, PhD, will speak.
Location: Turner Auditorium, Johns Hopkins Hospital. Register here.

December 17, 12:00 – 1:15 pm
Ethics for Lunch
Location: Room 2119, Sheik Zayed Tower, Johns Hopkins Hospital. Lunch will be provided.

Publications

The relationship between alcohol use and anxiety and retrospective attendance of primary care visits among women with human immunodeficiency virusAIDS Care
Authors: Song Ge, Mary E. McCaul, Marie T. Nolan, Zhe Wei, Tinting Liu, Geetanjali Chander

The decision partner in healthcare decision-making: A concept analysisInternational Journal of Nursing Studies
Authors: Tamryn F. Gray, Marie T. Nolan, Marla L. Clayman, Jennifer A. Wenzel

Individuation and implicit racial bias in genetic counseling communicationPatient Education and Counseling
Authors: Chenery Lowe, Mary Catherine Beach, Debra L. Roter

Safe Work-Hour Standards for Parents of Children With Medical ComplexityJAMA Pediatrics
Authors: Theodore E. Schall, Carolyn C. Foster, Chris Feudtner

Variation in Time to Notification After Enrollment in Trials Conducted Under Exception From Informed Consent for Emergency ResearchCirculation
Authors: Graham Nichol, Rui Zhuang, Tom P. Aufderheide, Eileen Bulger, Clifton W. Callaway, Jim Christenson, Mohamud R. Daya, Ahamed H. Idris, Peter Kudenchuk, Laurie J. Morrison, Martin A. Schreiber, George Sopko, Jeremy Sugarman, Christian Vaillancourt, Henry E. Wang, Myron Weisfeldt, Susanne May

Access to Care Among Individuals Who Experienced Medicaid Lockouts After Premium Nonpayment, JAMA Network Open
Authors: Brendan Saloner, Laura Dague, Donna Friedsam, Kristen Voskuil, Natalia Serna Borrero, Marguerite Burns

Healthy and Sustainable Diets and Food Systems: the Key to Achieving Sustainable Development Goal 2? Food Ethics
Author: Jessica Fanzo

Against the Political Use of Religious Exemptions,” Philosophy & Public Affairs
Author: Brian Hutler

Italy’s health performance, 1990–2017: findings from the Global Burden of Disease Study 2017,” The Lancet Public Health
Authors: GBD 2017 Italy Collaborators, including Jessica Fanzo

Predicting Opioid Overdose Deaths Using Prescription Drug Monitoring Program Data,” American Journal of Preventative Medicine
Authors: Lindsey M. Ferris, Brendan Saloner, Noa Krawczyk, et al

Viral Hemorrhagic Fevers in Pregnant Women and the Vaccine Landscape: Comparisons Between Yellow Fever, Ebola, and Lassa Fever, Current Tropical Medicine Reports
Authors: Carleigh B. Krubiner, David A. Schwartz

Global health, human rights, and the law, The Lancet
Authors: Leonard S. Rubenstein, Joseph J. Amon

U.S. women’s views on delaying pregnancy for the purpose of participating in biomedical research, American Journal of Obstetrics & Gynecology
Authors: E.F. Jaffe, K.A. Sullivan, I.T. Goldfarb, S.Z. Gilbert, M.S. Gross, J.S. Coleman, J. Anderson, L. Rahangdale, R.R. Faden, A.D. Lyerly

BI In the News

Travis Rieder, PhD, wrote an op-ed for The New York Times titled “What Chronic Pain Patients are Deeply Afraid Of,” and an article for Closler titled “Responsible Opioid Prescribing.”

Professor Rieder also spoke on several podcasts about his work on an ethical response to the opioid crisis, including Of Mountains & Minds, Parenting Well, WebMD’s Health Now podcast, and The Deciders Podcast.

Professor Rieder’s book, In Pain, was featured on NPR’s Best Books of the Year list.

Marielle Gross, MD, MBE, wrote an essay for Montclair University’s Creative Research Center titled “The Motivation to Collude vs. Collaborate in Academic Medicine.”

Jeremy Sugarman, MD, MPH, MA, spoke at Weill Cornell Medicine-Qatar. The event was covered by AlBawaba.

Jess Fanzo, PhD, was featured on WBAL TV in a feature about non-vegetarians indulging in alternative meat in Baltimore.

Yoram Unguru, MD, MS, MA, was featured in the HUB along with his work to spread awareness of the recent vincristine shortage.

Jeffrey Kahn, PhD, MPH, was interviewed on the Carnegie Council podcast about Gene Editing Governance and Dr. He Jiankui.

Outreach

December 10
Las Vegas, NV
Yoram Unguru, MD, MS, MA, will give a talk titled “Ethical Prescribing in the Era of Expensive Medications and Drug Shortages” at the American Society for Health System Pharmacists’ Midyear Clinical Meeting.

December 9-10
Istanbul, Turkey
Gail Geller, ScD, MHS, and Joseph Carrese, MD, MPH, FAACP, will teach a research ethics course to medical students at Bezmialem University.

December 3
New York, NY
Ruth Faden, PhD, MPH, Carleigh Krubiner, PhD, and Ruth Karron, MD, met with the WHO this week to consult the organization on developing ethics guidance for maternal immunization research.

November 27
Beirut, Lebanon
Leonard Rubenstein, JD, lectured on the ethical challenges in humanitarian health in situations of extreme violence at the American University of Beirut.

November 22
New York, NY
Travis Rieder, PhD, gave the keynote lecture at CUNY School of Medicine’s Opioid Student Summit. His talk was titled “In Pain: A Bioethicist’s Personal Struggle with Opioids.” He spoke at Yeshiva University School of Social Work on ethical opioid prescribing.

November 20
Fairfield, CT
Travis Rieder, PhD, gave a talk titled “In Pain: A Bioethicist’s Personal Struggle with Opioids” at Sacred Heart University.

November 19
Baltimore, MD
Gail Geller, ScD, MHS, gave the pediatric grand rounds at Sinai Hospital. Her talk was titled “The Paradox of Promise and the Many Faces of Hope in Pediatric Life-Limiting Diseases.”

November 18-20
Boston, MA
Debra Mathews, PhD, MA, served on a panel to discuss “Management of Incidental Findings (IFs) in Pragmatic Clinical Trials (PCTs)” at the PRIM&R Advancing Ethical Research Conference 2019.

November 17
Doha, Qatar
Jeremy Sugarman, MD, MPH, MA, spoke about the ethical and legal landscape of stem cell research at Weill Cornell Medicine-Qatar’s Intersection of Law & Medicine Series.

November 13
Hanover, IL
Travis Rieder, PhD, gave a lecture, “In Pain: A Bioethicist’s Personal Struggle with Opioids,” at Hanover College.

November 11-14
New York, NY
Debra Mathews, PhD, MA, served as a session chair for the Genome Project Write and 8th Annual Sc2.0 Meeting – “Future of Synthetic Genomes.“

November 6
Philadelphia, PA
Leonard Rubenstein, JD, gave a talk titled “Humanity, Medical Care, and Terrorism” at the American Public Health Association Annual Conference.

November 4
Newark, NJ
Norman Carl Swart, PhD, APRNc, spoke at the Rutgers University School of Nursing about “Cancer Nursing in a Resource-Limited, Middle-Income Country: The Case of Botswana.”

November 3
Philadelphia, PA
Travis Rieder, PhD, spoke about “Sustainability: Within Our Means, Within Our Reach.” Film Screening and Panel Discussion at the APHA Public Health Film Festival.

November 2
Greenwich, CT
Travis Rieder, PhD, gave the keynote speech, “In Pain: A Bioethicist’s Personal Struggle with Opioids,” at the ONSF 11th Annual Medical Education Conference

October 30
Washington, DC
Leonard Rubenstein, JD, testified before the US Congress Tom Lantos Human Rights Commission on protecting health care in armed conflict.

October 27-30
Orlando, FL
Travis Rieder, PhD, gave the keynote speech, “In Pain: A Bioethicist’s Personal Struggle with Opioids,” at the Planetree International Conference on Patient-Centered Care.