Bringing palliative care to pediatric patients suffering from chronic illness
Vision of Hope
Palliative care is traditionally focused on care for the terminally ill, but scholars at the Berman Institute are aiming to change that by bringing the principles and comfort of palliative care to pediatric patients suffering from chronic illness. The “Vision of Hope” curriculum guides healthcare workers in integrating the principles and practices of pediatric palliative care into their long-term care regimen.
“Vision of Hope” uses two specific chronic conditions as case studies: sickle cell disease (SCD) and Duchenne muscular dystrophy (DMD).
All content is free and publicly available at http://www.bioethicsinstitute.org/hope.