Levi Symposium 2019: Where can they live? The Ethical Challenges of Gaps in Community Supports, Services, and Placement Options for Children with Medical Complexity

Schedule of Events

2019 Robert H. Levi Leadership Symposium

Schedule

Monday, Feb. 4, 2019

Panel Discussion, 4-5:30 p.m.

Defining ‘Good Outcomes’ for Children, Families, and Systems of Care in the Context of Pediatric Medical Complexity

Panelists:
  • Marisa Berry – Parent Representative
  • Margaret Moon, MD, MPH – Chief Medical Officer, Johns Hopkins Children’s Center
  • Debbie Marini, MSW – Director of Placement and Permanency, Social Services Administration, Maryland Department of Human Services
  • Rebecca Jones Gaston, MSW – Executive Director, Social Services Administration, Maryland Department of Human Services
  • Chris Feudtner, MD, PhD, MPH – Steven D Handler Endowed Chair of Medical Ethics, Director of Research for the Pediatric Advanced Care Team, Children’s Hospital of Philadelphia

Working Group Dinner, 7-9 p.m.

By Invitation Only

Gunther & Co.
3650 Toone St.
Baltimore, MD 21224

Tuesday, Feb. 5, 2019

Professional Working Group, 8 a.m. – 4:30 p.m.

Where can they live?
The Ethical Challenges of Gaps in Community Supports, Services, and Placement Options for Children with Medical Complexity

By Invitation Only

Berman Institute of Bioethics
Deering Hall Lower Level Conference Room
1809 Ashland Ave.
Baltimore, MD 21205

Working Group Agenda

February 5, 2019; 8am-4:30pm

 8-8:15: Breakfast

8:15-8:45: Defining the problem; Goals for the session (Renee Boss)

8:45-10: Introductions and case presentations/discussion (Rebecca Seltzer)

  • Case 1 “William”: Tables 1,3,5 present and then discuss
  • Case 2 “Destiny”: Tables 2,4,6 present and then discuss

10-10:30: Healthcare focused panel

  • Margaret Moon, Johns Hopkins Children’s Center
  • Suzanne Rybczynski, Kennedy Krieger Institute
  • Richard Katz, Mount Washington Pediatric Hospital
  • Karen Fratantoni, Children’s National Medical Center

10:30-10:45: Morning break

10:45-11:15: Child welfare focused panel and discussion

  • Rebecca Jones Gaston, Social Services Administration
  • Kimberly Floyd, MATCH
  • Dianne McGinn, MENTOR Maryland

11:15-11:45: Other Maryland systems focused panel and discussion

  • Dawnn Williams, Medicaid
  • Janet Furman, DDA
  • Celinda Carr, Coordinating Center
  • Glinna Michael, REM

11:45-12:15: Advocacy/law focused panel and discussion

  • Diana Fertsch, Dundalk Pediatrics, former Maryland AAP chapter President
  • Mitch Merviss, Venable LLP, Advocates for Children and Youth
  • Rene Averitt-Sanzone, Parents’ Place of Maryland

12:15-12:30: Break, grab lunch

12:30-1:15: Lunch and home-based care panel discussion

  • Philip Tsagos, parent
  • Marisa Berry, parent
  • Deb Brown, Respiratory Therapist, Johns Hopkins Home Care
  • Sue Huff, Johns Hopkins Pediatrics at Home

1:15-2:30: Lessons learned from other states/care models and discussion

  • Dennis Kuo, University of Buffalo, Oishei Children’s Hospital
  • Renee Turchi, St. Christopher’s Hospital for Children
  • Julie Hauer, Seven Hills Pediatric Center, Boston Children’s Hospital
  • Chris Feudtner, Children’s Hospital of Philadelphia
  • Jay Berry, Boston Children’s Hospital

2:30-3:15: Small group break-out sessions

3:15-3:30: Afternoon break

3:30-4:15: Small groups present their suggestions and group discussion

4:15-4:30: Wrap up and next steps for plan moving forward