SNFBA Course Materials

Day 1
Day 2

2024 SNFBA Course Materials

The Stavros Niarchos Foundation Bioethics Academy (SNFBA) was created to support and enhance knowledge and awareness for bioethics in Greece. Learn more.

Day 1 | Day 2  

Day 1

8:30-9:00     Registration

9:00-9:15     Welcome

  • Jeffrey Kahn, PhD, MPH
    Andreas C. Dracopoulos Director of the Johns Hopkins Berman Institute of Bioethics
    Robert Henry Levi and Ryda Hecht Levi Professor of Bioethics and Public Policy
  • Effy Vayena, PhD
    Chair in Bioethics, ETH Zurich
    Chair of the Hellenic National Bioethics and Technoethics Commission

9:15-10:00     Introduction of Faculty and Participants

10:00-11:00     Session 1:  The Birth of Bioethics and the Rise of Autonomy: Issues and Cases that Shaped the Field

  • Jeffrey Kahn, PhD, MPH
    Andreas C. Dracopoulos Director of the Johns Hopkins Berman Institute of Bioethics
    Robert Henry Levi and Ryda Hecht Levi Professor of Bioethics and Public Policy
Readings
  1. Kuhse, Helga, and Singer, Peter. “What Is Bioethics? A Historical Introduction,” in A Companion to Bioethics, Second Edition, Ch. 1. Helga Kuhse and Peter Singer, eds. Blackwell Publishing, 2009.
  2. Mastroianni, Anna, and Kahn, Jeffrey. “Swinging on the Pendulum: Shifting Views of Justice in Human Subjects Research,” Hastings Center Report 31(3):21-18; 2001.

11:00-11:15     Break

11:15-12:15     Session 2: Philosophical Approaches in Bioethics

Readings
  1. Degrazia, David and Beauchamp, Tom L. “Philosophy: ethical principles and common morality.” Methods in Medical Ethics, pp.21-34, 2010.
  2. Richardson, Henry S. “Specifying, balancing, and interpreting bioethical principles,” in The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine (Vol. 25, No. 3, pp. 285-307), January 2000.
  3. Pellegrino, Edmund D. “Codes, virtue, and professionalism.” Methods in Medical Ethics, pp.91-107, 2010.

12:15-13:15     Small Group Session: The Charlie Gard Case

Reading

Case

13:15-14:15     Lunch

14:15-15:15     Session 3: Law, Policy, and Bioethics

Readings

Readings

  1. Rothstein, Mark. “The Role of Law in the Development of American Bioethics,” Journal of International Bioethique. 2009 December ; 20(4): 73–111.
  2. Brock L., Mastroianni A. “Clinical Ethics and Law,” Ethics in Medicine Online, University of Washington School of Medicine, Department of Bioethics & Humanities. (Also available at: https://depts.washington.edu/bhdept/ethics-medicine.) Last reviewed 2024.
  3. McFall v Shimp, 10 Pa. D. & C.3d 90 (1978).

Additional reading

  1. Andrews, Mehlman, and Rothstein. “Appendix A: The United States Legal System.” In Genetics: Ethics, Law and Policy, 4th ed., pp. 68-71. West Academic Publishing, 2015.

15:15-16:00     Case: Disclosure of Identities of Sex Workers with HIV in Greece

  • Georgios Karapanagos
    Epidemiologist, MSc Nutrition, Public Health, and Policy
  • Theodoros Trokanas, JD
    Faculty of Law AUTh
Reading

Case

16:00-17:00     Small Groups

17:00-     Networking Reception

Day 2

9:00-10:00     Session 4: Bioethics and Biolaw: European and Greek Perspective

Readings
  1. Frischhut, Markus, and Werner-Felmayer, Gabriele. “Medical ethical principles against the background of ‘European values’,” Healthcare Ethics and Communication 52(7):409-412 ;2024.
  2. Lecaros, Juan Alberto. “Biolaw and Bioethics: Convergences and Divergences,” in E. Valdés and J. A. Lecaros (eds.), Biolaw and Policy in the Twenty-First Century, International Library of Ethics, Law, and the New Medicine 78, pp. 93-118.

10:00-11:00     Session 5: Genetics and Ethics:  Developing “ELSI” Research

  • Kelly Ormond, MS
    ABGC and EBMG Registered Genetic Counselor
    Lecturer and Research Scientist, ETH-Zurich
Readings

Readings

  1. Dunbar Dolan, Deanne, Soo-Jin Lee, Sandra, and Cho, Mildred K. “Three decades of ethical, legal and social implications research: Looking back to chart a path forward.” Cell Genom. 2022 Jul 13; 2(7): 100150.
  2. Ormond, Kelly, Blassime, Alessandro, and Vayena, Effy. “Ethical aspects of pediatric genetics care.” Pediatr Clin North Am. 2023  Oct;70(5):1029-1046

Additional reading

    1. https://elsihub.org/

11:00-11:30     Break

11:30-12:15     Case Presentation: Savior Siblings

  • Jeffrey Kahn, PhD, MPH
    Andreas C. Dracopoulos Director of the Johns Hopkins Berman Institute of Bioethics
    Robert Henry Levi and Ryda Hecht Levi Professor of Bioethics and Public Policy

12:15-13:15     Small Groups

13:15-14:15     Lunch

14:15-15:15     Session 6: Ethical Governance of Emerging Biomedical Technologies

  • Debra Mathews, PhD, MA
    Associate Director for Research and Programs
    Johns Hopkins Berman Institute of Bioethics
Readings
  1. Mathews, Debra, Fabi, Rachel, and Offodile, Anaeze. “Imagining Governance for Emerging Technologies,” Issues in Science and Technology Spring 2022; 40-46.
  2. Mathews, Debra, Balatbat, Celynne, and Dzau, Victor. “Governance of Emerging Technologies in Health and Medicine — Creating a New Framework,” NEJM 2022.
  3. OECD (2024), Framework for Anticipatory Governance of Emerging Technologies, OECD Science, Technology and Industry Policy Papers, OECD Publishing, Paris. Forward, and Ch. 1: Introduction, pp. 7-13.

15:15-16:15     Session 7: Health, Digital Technologies, and Bioethics

  • Effy Vayena, PhD
    Chair in Bioethics, ETH Zurich
    Chair of the Hellenic National Bioethics and Technoethics Commission
Readings
  1. Vayena, Effy, Haeusermann, Tobias, Adjekum, Afua and Blasimme, Alessandro. “Digital health: meeting the ethical and policy challenges.” Swiss Medical Weekly, 2018, 148, p.w14571
  2. Vayena, Effy and Blasimme, Alessandro. “Health research with big data: time for systemic oversight.” The Journal of Law, Medicine & Ethics, 2018, 46(1), pp.119-129.
  3. Blasimme, Alessandro, Fadda, Marta, Schneider, Manuel, and Vayena, Effy. “Data sharing for precision medicine: policy lessons and future directions.” Health Affairs, 2018, 37(5), pp.702-709.

16:15-17:00     Group Discussion and Presentation of Certificates