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Johns Hopkins Berman Institute of Bioethics
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Johns Hopkins Berman Institute of Bioethics
Building Clinician-Parent Partnerships to Improve Care for Chronically Critically Ill Children (CCI)
Treating Clinician Videos
Building Clinician-Parent Partnerships to Improve Care for Chronically Critically Ill Children (CCI)
Family Videos
Treating Clinician Videos
Treating Clinician Videos
Clinician Video 1: Chronic Critical Illness Diagnosis
Clinician Video 2: Intrahospital Transfer
Additional Resources
Click to Expand
(
Click here for printable .pdf
)
Diagnosis
Talk about the BIG PICTURE to the family
Identify INTERDISCIPLINARY LEADERS – CONTINUITY ROLE
Identify a CONTINUITY TEAM/ ATTENDING
Prepare families as a COORDINATOR of their child’s care
Mention possibility of TEAM RELATIONSHIP GAPS
Offer CONTINUITY FAMILY MEETINGS
Bring DISCHARGE up early
Intrahospital Transfer
Prepare family for POTENTIAL TRANSFER; organize a UNIT TOUR; and talk about differences in UNIT ROUTINES
Anticipate FAMILY STRESS over changes; provide RESOURCES to families
TEAM HANDOFFS to include: BIG PICTURE INFORMATION; established COMMUNCATION ROUTINES with the family; FAMILY as a RESOURCE; BARRIERS FOR DISCHARGE
Update CASE MANAGERS about home needs
Expect MULTIPLE CONVERSATIONS
Clinician Video 3: Discharge from the Hospital
Clinician Video 4: Outpatient
Additional Resources
Click to Expand
(
Click here for printable .pdf
)
Discharge
Prepare families for changing ROUTINES
SYNTHESIZE major issues, current management, discharge planning, care goals, and family updates
Help families to become an ADVOCATE of their child: Encourage the use of a BINDER; they will become CENTRAL to clinical COMMUNICATION.
Check eligibility of a post-discharge CASE MANAGER
Discuss family’s own WELL-BEING and resources
Outpatient
Synthesize MAJOR ISSUES for handoff
– Consider a STANDARDIZED TOOL
Help families organize MEDICAL INFORMATION/ COORDINATE CARE
Check eligibility for a CASE MANAGER and track and prepare for SERVICE GAPS
Discuss family’s own WELL-BEING and resources for relief
Consider creating a POST-HOSPITALIZATION CHECKLIST
Ask families to inform the outpatient team of a REHOSPITALIZATION