Alan Regenberg, MBE is a core faculty member and the director of outreach and research support at the Johns Hopkins Berman Institute of Bioethics. His primary bioethics research interests include: emerging biotechnologies, public engagement, the allocation of scarce resources, and research ethics. At Johns Hopkins University, Alan is a member of an Institutional Review Board (IRB-6), and the Institutional Stem Cell Research Oversight Committee (ISCRO). He also serves as the coordinator and a consultant for the Research Ethics Consultation Service (RECS). In addition to his own research portfolio, he and his team provide rapid-response support to Berman Institute researchers. They are also responsible for social media dissemination and active public engagement around the Institute’s work. This includes: The Berman Institute Bioethics Bulletin (See his blog posts), Facebook, Twitter, Mastodon, YouTube, LinkedIn, and Weekly Bioethics Email Digests. [He/Him]
Alan is also engaged in a broad range of research projects and programs, including the Berman Institute’s science programs: the Stem Cell Policy and Ethics (SCOPE) Program; the Program in Ethics and Brain Sciences (PEBS-Neuroethics); and the Hinxton Group, an international consortium on stem cells, ethics and law; and the eSchool+ Initiative. Recent research has focused on using deliberative democracy tools to engage with communities about their values for allocating scarce medical resources like ventilators in disasters like pandemics. Additional recent work has focused on ethical challenges related to gene editing, stem cell research, social media, public engagement, vaccines, and neuroethics. (Publications)
- Bioethics and social media
- Stem cell science
- Gene editing
- Allocation of scarce resources
- Global bioethics
- Ethics & pandemic response in K-12 schools
- Ethics & virtual humans
- Research ethics
- BA, History and Psychology, Rutgers University
- MBE, University of Pennsylvania
Why It’s Important to Study Human-Monkey Embryonic Chimeras in a Dish. De Los Angeles A*, Regenberg A*, Mascetti V*, Benvenisty N, Church G, Deng H, Belmonte JCI, Ji W, Koplin J, Loh Y, Niu Y, Pei D, Pera M, Pho N, Pinzon-Arteaga C, Saitou M, Silva J, Tao T, Trounson A, Warrier T, Zambidis ET. Nature Methods. Online Ahead of Print. July 25, 2022. (*Co-first authorship)
K-12 Schools in the United States during the COVID-19 pandemic: Public health mitigation, equity considerations, and the impact of education disruption on our nation’s most disadvantaged youth. Collins M, Johnson S, Regenberg A, Anderson A, Marshall B, Nicklin A, Faden R. Forthcoming 2022. In Safe and Healthy Schools in the 21st Century. Johns Hopkins University Press, Baltimore, MD.
Assessing the Governance of Digital Contact Tracing in Response to COVID-19: Results of a Multi-National Study. Hutler B, Blasimme A, Gur-Arie R, Ali J, Barnhill A, Hood A, Kahn J, Perkins NL, Regenberg A, Vayena E. Journal of Law, Medicine & Ethics. Accepted for publication.
Toward a Theory of Moral Status Inclusive of Nonhuman Animals: Pig Brains in a Vat, Cows versus Chickens, and Human-Nonhuman Chimeras. Faden R, Beauchamp T, Regenberg A, Mathews DJH. September 2021. In Rethinking Moral Status. Oxford University Press, Oxford, UK: Chap. 10.
Biologics for Chronic Rhinosinusitis with Nasal Polyps: Economics and Ethics. Roland LT, Regenberg A, Luong AU, Wise SK, Toskala E, Lam KK, Levy JM, Franzese CB, Kim J. International Forum of Allergy & Rhinology. 2021. Published Online Ahead of Print, July 11, 2021.
Interim Framework for COVID-19 Vaccine Allocation in the United States. Toner E, Barnill A, Krubiner C, Bernstein J, Privor-Dumm L, Watson M, Martin E, Potter C, Hosangadi D, Connell N, Watson C, Schoch-Spana M, Goodwin Veenema T, Meyer D, Daugherty Biddison EL, Regenberg A, Inglesby T, Cicero A. The Johns Hopkins Center for Health Security. 2020, August 19.
How K-12 Schools Should Prepare for Reopening During the 2020-21 Academic Year: An Equity Checklist. Anderson A, Barnhill A, Collins M, Faden R, Faxon E, Johnson S, Liu, A Marshall B, Morphew C, Regenberg A, Wahl M. The Johns Hopkins eSchool+ Initiative. 2020, June.
Digital Contact Tracing for Pandemic Response: Ethics and Governance Guidance. Kahn J, Johns Hopkins Project on Ethics and Governance of Digital Contact Tracing Technologies. Johns Hopkins University Press, 2020. Project MUSE, doi:10.1353/book.75831.
Influence of Community and Culture in the Ethical Allocation of Scarce Medical Resources in a Pandemic Situation: Deliberative Democracy Study. Shoch-Spana M, Brunson EK, Gwon H, Regenberg A, Toner ES, Daugherty-Biddison EL. 2020. Journal of Participatory Medicine 12(1): e18272.
Science and social media. Regenberg A. 2019. Stem Cells Translational Medicine, Online Ahead of Print.
Too many patients… A framework to guide statewide allocation of scarce critical resouces during disasters. Daugherty Biddison EL, Faden RR, Gwon HS, Mareiniss D, Regenberg A, Schoch-Spana M, Schwartz J, Toner ES. 2018. Chest. (Online ahead of Print).
Scarce resource allocation during disasters: a mixed-method community engagement study. Daugherty Biddison EL, Gwon HS, Schoch-Spana M, Regenberg A, Juliano C, Faden RR, Toner ES. 2018. Chest 153(1): 187-95. doi: 10.1016/j.chest.2017.08.001.
Genome editing technologies and human germline genetic modification: the Hinxton Group consensus statement. Chan S, Donovan PJ, Douglas T, Gyngell C, Harris J, Lovell-Badge R, Mathews DJH, Regenberg A, on behalf of the Hinxton Group. 2015 Dec 2. American Journal of Bioethics 15(12): 42-47.
CRISPR: a path through the thicket. Mathews DJH, Chan S, Donovan PJ, Douglas T, Gyngell C, Harris J, Regenberg A, Lovell-Badge R. Nature. 2015 Nov 12; 527(7577): 159-61.
Outreach and engagement: evolving media and the public obligations of stem cell science. Regenberg AC, Schall TE. 2015 Dec. Current Stem Cell Reports. 1(4): 219-26.
The community speaks: understanding ethical values in allocation of scarce lifesaving resources during disasters. Daugherty Biddison EL, Gwon H, Schoch-Spana M, Cavalier R, White DB, Dawson T, Terry PB, London AJ, Regenberg A, Faden R, Toner ES. Ann Am Thorac Soc. 2014 April 24; 11(5): 777-83.
Stem cell science should be tweeted. Regenberg AC. Regenerative Medicine. March 2014, Vol. 9, No. 2, Pages 125-127 , DOI 10.2217/rme.13.94
Bioethical considerations in developing a biorepository for the Pneumonia Etiology Research for Child Health project. DeLuca AN, Regenberg A, Sugarman J, Murdoch DR, Levine O. Clin Infect Dis. 2012 Apr;54 Suppl 2:S172-9. doi: 10.1093/cid/cir1063. Review.
DeCamp M, Joffe S, Fernandez CV, Faden RR, Unguru Y, and the Working Group on Chemotherapy Drug Shortages in Pediatric Oncology. Chemotherapy drug shortages in pediatric oncology: A consensus statement. Pediatrics. 2014;doi: 10.1542/peds.2013-2946.
Promoting justice in stem cell intellectual property. Regenberg A, Mathews DJ. Regenerative Medicine. 2011 Nov;6(6 Suppl):79-84. doi: 10.2217/rme.11.68. Review.
Ethics and best practice guidelines for training experiences in global health. Crump JA, Sugarman J; Working Group on Ethics Guidelines for Global Health Training (WEIGHT). Am J Trop Med Hyg. 2010 Dec;83(6):1178-82. doi: 10.4269/ajtmh.2010.10-0527. Free PMC Article
Tweeting science and ethics: social media as a tool for constructive public engagement. Regenberg AC. Am J Bioeth. 2010 May;10(5):30-1. doi: 10.1080/15265161003743497.
Medicine on the fringe: stem cell-based interventions in advance of evidence. Regenberg AC, Hutchinson LA, Schanker B, Mathews DJ. Stem Cells. 2009 Sep;27(9):2312-9. doi: 10.1002/stem.132. Free Article
Unintended changes in cognition, mood, and behavior arising from cell-based interventions for neurological conditions: ethical challenges. Duggan PS, Siegel AW, Blass DM, Bok H, Coyle JT, Faden R, Finkel J, Gearhart JD, Greely HT, Hillis A, Hoke A, Johnson R, Johnston M, Kahn J, Kerr D, King P, Kurtzberg J, Liao SM, McDonald JW, McKhann G, Nelson KB, Rao M, Regenberg A, Smith K, Solter D, Song H, Sugarman J, Traystman RJ, Vescovi A, Yanofski J, Young W, Mathews DJ. Am J Bioeth. 2009 May;9(5):31-6. doi: 10.1080/15265160902788645.
The role of animal models in evaluating reasonable safety and efficacy for human trials of cell-based interventions for neurologic conditions. Regenberg A, Mathews DJ, Blass DM, Bok H, Coyle JT, Duggan P, Faden R, Finkel J, Gearhart JD, Hillis A, Hoke A, Johnson R, Johnston M, Kahn J, Kerr D, King P, Kurtzberg J, Liao SM, McDonald JW, McKhann G, Nelson KB, Rao M, Siegel AW, Smith K, Solter D, Song H, Sugarman J, Vescovi A, Young W, Greely HT, Traystman RJ. J Cereb Blood Flow Metab. 2009 Jan;29(1):1-9. doi: 10.1038/jcbfm.2008.98. Epub 2008 Aug 27. Review. Free PMC Article
Cell-based interventions for neurologic conditions: ethical challenges for early human trials. Mathews DJ, Sugarman J, Bok H, Blass DM, Coyle JT, Duggan P, Finkel J, Greely HT, Hillis A, Hoke A, Johnson R, Johnston M, Kahn J, Kerr D, Kurtzberg J, Liao SM, McDonald JW, McKhann G, Nelson KB, Rao M, Regenberg A, Siegel AW, Smith K, Solter D, Song H, Vescovi A, Young W, Gearhart JD, Faden R. Neurology. 2008 Jul 22;71(4):288-93. doi: 10.1212/01.wnl.0000316436.13659.80. Epub 2008 May 7. Review.
Psychiatric and neuropsychiatric adverse events associated with deep brain stimulation: A meta-analysis of ten years’ experience. Appleby BS, Duggan PS, Regenberg A, Rabins PV.Mov Disord. 2007 Sep 15;22(12):1722-8.
Resisting the tide of professionalization: valuing diversity in bioethics. Regenberg AC, Mathews DJ. Am J Bioeth. 2005 Sep-Oct;5(5):44-5. No abstract available.