Forjando Alianzas Entre Padres y Equipos Médicos para Mejorar el Cuidado de Niños con Enfermedades Crónicas Críticas

Treating Clinician Videos

Clinician Video 1: Chronic Critical Illness Diagnosis

Clinician Video 2: Intrahospital Transfer

Additional Resources

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Diagnosis
  • Talk about the BIG PICTURE to the family
  • Identify INTERDISCIPLINARY LEADERS – CONTINUITY ROLE
  • Identify a CONTINUITY TEAM/ ATTENDING
  • Prepare families as a COORDINATOR of their child’s care
  • Mention possibility of TEAM RELATIONSHIP GAPS
  • Offer CONTINUITY FAMILY MEETINGS
  • Bring DISCHARGE up early

Intrahospital Transfer

  • Prepare family for POTENTIAL TRANSFER; organize a UNIT TOUR; and talk about differences in UNIT ROUTINES
  • Anticipate FAMILY STRESS over changes; provide RESOURCES to families
  • TEAM HANDOFFS to include: BIG PICTURE INFORMATION; established COMMUNCATION ROUTINES with the family; FAMILY as a RESOURCE; BARRIERS FOR DISCHARGE
  • Update CASE MANAGERS about home needs
  • Expect MULTIPLE CONVERSATIONS

Clinician Video 3: Discharge from the Hospital

Clinician Video 4: Outpatient

Additional Resources

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Discharge
  • Prepare families for changing ROUTINES
  • SYNTHESIZE major issues, current management, discharge planning, care goals, and family updates
  • Help families to become an ADVOCATE of their child: Encourage the use of a BINDER; they will become CENTRAL to clinical COMMUNICATION.
  • Check eligibility of a post-discharge CASE MANAGER
  • Discuss family’s own WELL-BEING and resources

Outpatient

  • Synthesize MAJOR ISSUES for handoff
    – Consider a STANDARDIZED TOOL
  • Help families organize MEDICAL INFORMATION/ COORDINATE CARE
  • Check eligibility for a CASE MANAGER and track and prepare for SERVICE GAPS
  • Discuss family’s own WELL-BEING and resources for relief
  • Consider creating a POST-HOSPITALIZATION CHECKLIST
  • Ask families to inform the outpatient team of a REHOSPITALIZATION